Sometimes I go back to childhood
Sometimes I get depressed and get upset for no apparent reason
Sometimes I cannot remember things
Sometimes I ask why me? What would like have been like without all this?
Sometimes I think there are a lot worse off than me, don’t feel sorry for yourself.
Sometimes people assume or ask if you are ok, the simple reply being yes, but that isn’t always true, just because you look fine
Fatigue, hurt, anger, pain, memory loss, frustration, lack of confidence, anxiety, balance, to name a few, still pass through my mind, but I’m alive.
By going to Headway you know you are not alone, everyone listens and shares their own experiences and emotions with you. You make friends and yes, you can have a laugh.
Sue was diagnosed with a brain tumour 18 years ago and has since had two brain surgeries. In Sue’s words: ‘Unfortunately, there are 3 more tumours, but life goes on!’
Sometimes people ask if I’m ok
I answer yes! But in a way
They don’t know what I’ve been through
That I’ve had to start my life anew
Sometimes I’m like a child
My mind is AWOL running wild
I get times when I cannot spell
But people say, ‘you look so well!’
Sometimes I feel anger and pain
Damned if I’ve forgotten again
What was it that I’ve got to do?
I can’t remember the words to tell you
Sometimes I get quite depressed
I get upset and easily stressed
There is a reason for this strain
It’s down to the injury in my brain
Sometimes I lack confidence
It’s certainly no coincidence
My mind tells me I mustn’t panic
But anxious thoughts just make things manic
Sometimes I can feel quite dizzy
And my balance goes, I’m in a tizzy
I’m scared of going out alone
‘Help me please! I’m on my own!’
Sometimes I get extremely tired
My brain feels it needs re-wired
My get up and go has got up and gone
But life must still go on and on
Sue and her husband Rob compiled this poem together.